CCHS Success Stories with Avery Biomedical Devices

Yonathan

Yonathan with his Avery diaphragm pacer Yonathan was born in 2004 and diagnosed with CCHS (Congenital Central Hypoventilation Syndrome) by two months [...]

ROHHADS and CCHS Patient Pacing for over 10 Years

Josh's school photo Josh’s mother noticed that he was struggling to stay awake. After suffering full respiratory arrest, numerous tests were performed to [...]

Cash

Cash at age 5 Cash was diagnosed with Congenital Central Hypoventilation Syndrome (CCHS) and was given a tracheostomy as an infant. He [...]

Emily – Congenital Central Hypoventilation Syndrome

Emily is ventilator-free, allowing her to enjoy horseback riding Emily has been using the Avery Diaphragm Pacemaker since she was three years [...]

Skiing with the Avery Diaphragm Pacemaker

Shortly after birth, Evan was diagnosed with CCHS. He was given a tracheostomy and ventilated at 5 weeks old, and at age 4 he had [...]

Anna

Anna enjoying her freedom from VPAP on a hike Anna was born in Denmark in 1996 and was diagnosed with CCHS at [...]

Avery’s Ballerina

Elise has Congenital Central Hypoventilation Syndrome (CCHS). Because Elise would get at least two infections a year, her doctor recommended the Avery Diaphragm Pacemaker. In [...]

Marliné Competes in Show Jumping

Marliné competing in show jumping Marliné was born prematurely in South Africa in 2011. She was diagnosed with Congenital Central Hypoventilation Syndrome (CCHS). [...]

Shannon & Lauren

Lauren and Shannon with their children Shannon and Lauren are 33-year-old identical twins living with CCHS. From birth to age 8, ventilation [...]

Leo Travels the World

Leo and his father on an adventure Leo was diagnosed with Congenital Central Hypoventilation Syndrome (CCHS). In 2015, at age 5, he was [...]

Polina Now Living at Home Vent-Free

Polina was born with CCHS in 2006. She spent the first four years of her life in a hospital on mechanical ventilation before she was [...]

Being Able to Hike with The Avery Diaphragm Pacemaker

Allie was born with the rare condition of Congenital Central Hypoventilation Syndrome (CCHS). Due to CCHS she requires 24/7 mechanical ventilation. At 10 years old, [...]

International CCHS Conference 2018

5th International CCHS Conference: The Future is NOW Priorities, Partnerships, and Patient Voice When: June 20-23, 2018 Where: Chase Park Plaza, St. [...]

Sogi

Sogi was born in August 1993 and soon after was diagnosed with Congenital Central Hypoventilation Syndrome, which was managed via mechanical ventilation. In the summer [...]