Polina, Pacing Since 2010
Polina was born with CCHS in 2006. She spent the first four years of her life in a hospital on mechanical ventilation before she was implanted with the Avery Diaphragm Pacemaker in 2010 in Uppsala, Sweden. She has been able to attend school and live at home with her family, thanks to the mobility and […]
Allie, Pacing Since 2009
Allie was born with the rare condition of Congenital Central Hypoventilation Syndrome (CCHS). Due to CCHS she requires 24/7 mechanical ventilation. At 10 years old, she had a tracheostomy and was hooked up to a mechanical ventilator. In September 2009, at age 14, she was implanted with the Avery Diaphragm Pacemaker at Children’s Hospital of […]
Sogi
Sogi was born in August 1993 and soon after was diagnosed with Congenital Central Hypoventilation Syndrome, which was managed via mechanical ventilation. In the summer of 2005, Sogi and his family traveled to the Children’s Hospital of Los Angeles to be implanted with a diaphragm pacing system. His pulmonologist and a surgeon traveled with him […]
