sogi cchsSogi was born in August 1993 and soon after was diagnosed with Congenital Central Hypoventilation Syndrome, which was managed via mechanical ventilation.

In the summer of 2005, Sogi and his family traveled to the Children’s Hospital of Los Angeles to be implanted with a diaphragm pacing system. His pulmonologist and a surgeon traveled with him so they could apply what they learned about diaphragm pacing upon their return to Japan.